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Pray for Arnez
Hello fellow GUNROX community, a friend needs support.
I am making this thread on behalf of my friend toolatetorun. Some of you may know him.
He is going through a tough time right now with his son Arnez. He has been diagnosed with a very rare skin disease called Tuberous Sclerosis. It is very rare, about one in a billion kids get it. It is not fatal, but it is an uphill battle that he is fighting. He still suffers seizures, but the medicine that he is taking is controlling them better. The medicines, unfortunately, have a down side called tunnel vision. I am not 100% on the effects but our fellow friend toolatetorun can maybe answer any questions you have.
I make this thread on his request to give him some support and courage. It would really make me and him happy if you could give him kind thoughts if you could take the time to reply to this thread.
Toolatetorun is in my thoughts about his son!
Sincerely, Explosion. - best of wishes my friend!!! Please keep us posted, we are very concerned!
A message from toolatetorun: live your live everyday the way you want, be you, live it to the fullest... because you do not know what will happen tomorrow.
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this is very serious
his son wont be able to do some of the things that we can. I hate that I cant do anything about this but there is one thing that we can all do. Please pray for them and send a little message to toolatetorun giving him support
WERE THERE FOR YOU
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Hello fellow GUNROX community, a friend needs support.
I am making this thread on behalf of my friend toolatetorun. Some of you may know him.
He is going through a tough time right now with his son Arnez. He has been diagnosed with a very rare skin disease called Tuberous Sclerosis. It is very rare, about one in a billion kids get it. It is not fatal, but it is an uphill battle that he is fighting. He still suffers seizures, but the medicine that he is taking is controlling them better. The medicines, unfortunately, have a down side called tunnel vision. I am not 100% on the effects but our fellow friend toolatetorun can maybe answer any questions you have.
I make this thread on his request to give him some support and courage. It would really make me and him happy if you could give him kind thoughts if you could take the time to reply to this thread.
Toolatetorun is in my thoughts about his son!
Sincerely, Explosion. - best of wishes my friend!!! Please keep us posted, we are very concerned!
A message from toolatetorun: live your live everyday the way you want, be you, live it to the fullest... because you do not know what will happen tomorrow.
just 2 weeks ago i cared less about what tommorow brought now i can't wait to wake up and see tommorow. Anything u ever wished to do or dreamed to explore i plz wish u have the heart to go do it. Life is not a game nor do we need to pretend its pointless. Love the ones that love u, tell them everyday. Dont wait til its toolate to let someone know u truely love them and would die to see them live. Times are hard now i realize what my family is up against and i look back like life has been a breeze til now. If anything i can share from this is that time can be as short as tommorow so get the most out of it. Thanks for the support and for all that may not like me i wish to say im sorry. If what i did is toolate to return from i will respect your decision but never did i mean any of it, it was just a game to me with great friends that i have grown to love. zkzo explosion c2a my brothers for life and i pray for every last 1 of u. Anyone that i may not have said plz i don't feel i forgot u just dealing with alot.
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just 2 weeks ago i cared less about what tommorow brought now i can't wait to wake up and see tommorow. Anything u ever wished to do or dreamed to explore i plz wish u have the heart to go do it. Life is not a game nor do we need to pretend its pointless. Love the ones that love u, tell them everyday. Dont wait til its toolate to let someone know u truely love them and would die to see them live. Times are hard now i realize what my family is up against and i look back like life has been a breeze til now. If anything i can share from this is that time can be as short as tommorow so get the most out of it. Thanks for the support and for all that may not like me i wish to say im sorry. If what i did is toolate to return from i will respect your decision but never did i mean any of it, it was just a game to me with great friends that i have grown to love. zkzo explosion c2a my brothers for life and i pray for every last 1 of u. Anyone that i may not have said plz i don't feel i forgot u just dealing with alot.
thanks for reminding me. best wishes to you and your family man.
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i also had an illnes not the same but in some things similar.
I understand the situation and i wish the best to get his son better..
nothing is worst for a parent than see his her children got bad health
i know.
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courage ....
With these few words I bring you all my support, and your family. This should not be very pleasant moments to live. Although I can not change anything, but I wish you the situation as quickly arranged.
I also have children, and my boy (4 years) also had a lot of problems in his young life.
Thank God it's all arranged.
I wish you the same thing.
Courage Arnez and fight.
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With these few words I bring you all my support, and your family. This should not be very pleasant moments to live. Although I can not change anything, but I wish you the situation as quickly arranged.
I also have children, and my boy (4 years) also had a lot of problems in his young life.
Thank God it's all arranged.
I wish you the same thing.
Courage Arnez and fight.
thank u for your encouragement to continue this fight that most likely will not end but im a fighter and ready for war and to your family i will pray for your son also i hope everything is being done to make sure he can live a normal happy life and with beside him i know its possible. thanks to everyone expressing their concerns its helps me not feel so alone right now.
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i also had an illnes not the same but in some things similar.
I understand the situation and i wish the best to get his son better..
nothing is worst for a parent than see his her children got bad health
i know.
yeah its hard to not understand how or why or when things will get better but thank u for your prayer we will always fight and never give up.
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Childs are most precious in our life.
Pray all be fine pal
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Oh Life...Life..
Life bring sometimes unhappy things in our life! but toolate i know that u are a strong man... and your child should be like u... i wish Arnez will be good in short time...God be with him!
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